Welcome to my blog which uses a
multisensory lens to present and explore personal experiences and research with
and about disability.
This inaugural post is about my most
recent piece of work. I presented a
poster entitled:
Towards an ethical approach to information sharing and
the representation of disabled people and their support networks
My poster abstract
This work draws upon
previous work by the researcher in the fields of critical disability studies
and community psychology as well as the current research project about the real
lived experiences of Epidermolysis Bullosa. A multisensory lens will be used to
enhance engagement with the visual poster format.
This poster will explore
the patient experiences of healthcare in England and develop an ethical
framework to enable the information sharing process to be inclusive. Despite the sometimes vulnerable position of
disabled people (Brown, 2015), the researcher argues that the disabled person
and their chosen support networks should be at the centre of the decision
making process. Information should be
treated with a duty of care towards everyone involved in the sharing of
information about disability and patienthood.
References:
- Brown,
K.; “Vulnerability: towards exclusionary welfare?” Social Justice Seminar
series, MMU, 10th February 2015-02-25
- Naseem,
S. K.; Lawthom, R.; and Lee, H.; “Where to position
disability in research? Transcending experiences of MSc dissertation work
and embracing theory and practice” Paper presented at RIHSC conference, 4th-5th
July 2013
When this poster was exhibited at a
seminar in Bradford, UK, I was awarded a prize for Best Poster. I would like to
thank Sue Baines and Sue Richardson for the opportunity to present my work in
an interesting seminar and for recognising the relevance of my work to the
topic as well as taking an interest in the multisensory poster format. I will be writing a blog post about the
construction of my poster and how I am developing a multisensory lens.
About the seminar:
Seminar 2:Multi-agency, Multi-user, Multi-locale Working: Sharing Information for and about Families (University of Bradford, Bradford, 5 March 2015,
To find out more about this seminar series please see the following links:
“What needs to be shared (and not shared) when we share information?” New article from The Bradford University
School of Management , Published on 13th March 2015
A fellow
delegate has written a blog post about this seminar.
“It’s never too late to learn” by Kathryn Ward, Engagement Manager,
Centre of Excellence for Information Sharing, published on 13th
March 2015
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